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July 17, 2009
Posted: 603 GMT
TOKYO, Japan – One of the stories that have most affected us in the Tokyo bureau has been the trials of Japanese families trying to get life saving organ transplants for their children. We have spoken to several such families, and profiled two of them. In both cases, the emotions involved are some of the most intense I have been through at this job. These are parents fighting for, and sometimes losing, the lives of their children. But what is most striking is not the tragedy, it is the strength and determination of these families. Just a few weeks ago, we had done a story about Japan’s organ transplant law and its effects on families whose children need a transplant to survive. The law required donors to have provided written consent, and prohibited those younger than 15 years old from donating organs. With next to no donors under 15, many Japanese families with children in need of transplants were forced to go abroad, in many cases in order to keep their children alive. What’s more, the costs of doing so are exorbitant, at times between $1 million and $2 million dollars. Of course, very few families can afford to pay that much, so a system sprang up where those who had been through the process taught other families the best ways to raise donations. They sought donations in the streets, in Japanese media, and on the Internet. In our original report, we followed the family of 11-year-old Hiroki Ando, who suffered from cardiomyopathy. His doctors told him he needed a transplant in order to survive. Hiroki’s parents had already lost one child who had the same condition, and they were determined to do everything they could to keep Hiroki alive. Read the story This week, Japan’s parliament voted to change the organ transplant law. The law is complex, and the central change is that now death for the purposes of organ donation would be brain death, not the stopping of the heart. Though it won’t take effect for a year, the new law will make it easier for children to receive donations at home in Japan. We visited the Nakazawa family, who had campaigned to have the law changed. Their interest could hardly be more personal, as they had lost their 16-month old son Soutaro last December. He died in a hospital in California after they had managed to raise the 1.7 million dollars needed. Doctors asked them why the Japanese children who came for transplants always arrived so late. Anyone who has lost a family member knows the depth of grief that can bring. In their case, it seemed unusually cruel, after they had gone to such lengths to raise the money and gone so far to save their son. It would be natural, I think, for the Nakazawas to avoid reminders of Soutaro just to manage their grief. But when we walked into their apartment in Yokohama, it was like a shrine to their lost son. His pictures filled three walls of the living room, along with his toys and other reminders. Namie, Soutaro’s mother, said they couldn’t hide from their grief because they owed a debt to all those who had helped them raise the funds for his operation. With tears in her eyes she said she had thought the only way to repay them was to bring Soutaro home healthy but that was impossible. So she and her husband, Keiichiro, devoted themselves to getting the transplant law changed. They were in parliament when the result was announced, and they both broke down. Keiichiro told us Soutaro had shown them the path, and he was constantly with them. As for Hiroki, he is in a hospital in New York, where he has had the transplant operation. Though the recovery is filled with risks, his parents say he is doing well. Posted by: CNN Correspondent, Morgan Neill |
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