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October 22, 2008
Posted: 1812 GMT
LONDON, England - Eighteen months ago, Daniel James was paralyzed from the chest down in a rugby training accident. After living for more than a year with his disability, James made repeated appeals to his family to end his life. Last month, his family consented to bring him to a clinic for assisted suicide in Switzerland. He died on September 12.
Daniel James, who played rugby for England under-16s, was paralyzed during match practice last year.
Committing suicide is not against British law. But assisting a suicide is punishable by up to 14 years in prison. When James' parents returned to England they were investigated by British police. There has been no decision about whether to prosecute yet. Understandably, the James family does not wish to speak to the press. They reached a painful and heartbreaking decision only to endure a police investigation. Media attention is probably the last thing they want. So, in order to cover this story, we decided to interview several other people who could help us understand how and why Daniel James took his own life. First, we spoke to Debbie Purdy. She is suffering from multiple sclerosis, cared for by her musician husband Omar Puente. She is fighting in British court for the right to commit suicide with the help of her husband. We drove several hours to reach Debbie and Omar at their home in northern England. On the trip we talked about how we would approach the interview. How could we discuss death and suicide as sensitively as possible? I think we were apprehensive, at first, unsure of what to expect. But as soon as Debbie opened the door we realized we should not have worried. Debbie has a million watt smile and Omar has a booming laugh to match it. They are a contagiously happy couple. Debbie explained that she did not want to die now. But, in the event that her disease becomes so unbearable and intolerable, she does want to make plans for an assisted suicide with the help of her husband. And she doesn't want him to go to jail for helping her. "I started using an electric wheelchair in February this year. Ten years ago, I was walking with a stick," she says. "My independence won't be there for very long and I'm not prepared for him to face jail like the James family is doing at the moment." Throughout the interview, Debbie holds Omar's hand. He helps her when her hands shake and she is unable to hold a glass of water. She stumbles repeatedly over the word "deteriorating condition" and he listens to her patiently. Interestingly, Omar makes a point of saying there are some good things about her worsening condition. Now that she needs to use an electric wheelchair to propel herself, Omar can walk next to her and hold her hand. Also, he says, she doesn't have to crane her neck anymore to look behind and talk to her husband as he pushes her wheelchair. It's the little things, he laughs. And death is not something they dwell on. "It's not a thing that you talk about every day", he says. "At the beginning there was confusion. But we talked and the bottom line is this is Debbie's decision. It's Debbie. Debbie is here in this wheelchair. It's Debbie's decision and I'm with her." We also interviewed Matt Hampson, a 23-year old former rugby player. He suffered the same catastrophic injury that Daniel James did in rugby training: a dislocated spine that paralyzed him from the neck down. But unlike Daniel James, Matt has not only accepted his disability, he has embraced his new life. "You know your life is different now. It's not over, it's different. And it's not any worse. Some ways it's better," he explains. Matt needs 24-hour care. He breathes through a ventilator and moves about using a wheelchair steered with his chin. Yet, Matt has a packed schedule of activities. He writes a rugby commentary, interviewing over the phone. He runs a rugby website dedicated - not just to the sport - but to his Special Effects charity for children with similar injuries. And that's when he's not building his new house, writing his autobiography or coaching the local Rugby team. It's not easy. Matt says he has plenty of gloomy days but they don't last. "I'm quite lucky because I'm not the sharpest tool in the box," he jokes, "Basically, I don't think about things too much. I don't read into things. I just try, I just try to look at life in a simplistic view and go out and do my own thing and not think about what people think and just get on with it really." He tried to share that message with Daniel James before he died. Matt refuses to pass judgment on the James family's decision. "At the end of the day, it was his decision." Matt says, "Who am I to judge what he did?" We left both interviews feeling strangely uplifted. The interviews were frank and funny even as we talked about pain and suffering. In fact, what strikes me most about the interviews is not just how extraordinary Debbie, Omar and Matt are but how they manage to talk about their difficult lives with such grace and ease. It felt like having a friendly chat over a cup of tea. A reminder that sometimes just talking about the possibility of death is a good way to appreciate life. Posted by: Atika Shubert, CNN Correspondent |
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